How about YOUR question here?
Read below or choose another question.
See also, Dilantin causing seizures
See also, Dilantin causing false alcohol test
See also the Diet Alternative to Dilantin
See yet another eMail from someone who feels forced to take Dilantin
This single page is one of the most often visited on this entire web site. As I have observed the popularity of this page I have, logically, decided to add to the page with additional pages -- linked to this one. And, so, this page continues to increase in usefulness to viewers. Now, yet another eMail message from a man who found this information on Dilantin useful, and who has taken responsibility for his own health, in the face of the fearful advice he gets from virtually any medical person he talks to.
The most worrisome truth I can offer you is that ANY TIME a person has any seizure, or any head injury, the doctor treating that person is faced with a horrible delema. The "practice of medicine" has been taken from his hands, and turned over to a committee, or an HMO.
The "standard of care" in these situations is Dilantin, or some anti-seizure drug. You can read, here, about how terrible this drug is, how harmful. You might even have a doctor who agrees, and who sympathizes with you. His hands are tied. He MUST give you the "standard" recommendation for treatment -- Dilantin for the rest of your life.
You can even insist that you will not take it? He may then refuse to treat you further. In any event, he will find a way to distance himself from you so that IF you have another seizure, and die, you cannot sue HIM.
I even had a man angry at me, complaining that I recommended so much against Dilantin that his father refused to take it, drove, had a seizure, had an accident, and that his mother died in that accident.
If you have seizures, now and then, perhaps you should not drive? But, in any event you should know that this is a terrible drug. I think the alternatives are OK, but I am not a doctor and cannot prescribe.
IF you want to get off Dilantin, it will have to be YOUR decision -- probably without recourse to any doctor.
This story is inspiring -- I suggest you read all the pages linked from this one -- for valuable information about Dilantin.
June 2002
Dear Karl,
A wonder to find you...I'm on Dilantin and know I have to get off...
I had a Grand Mal
seizure 6 months ago of unknown origin....
One week in ICU and no answers on why...
Finally diagnosed with seizure disorder and a stroke..
An MRI 6 months later by another organization (VA) shows no sign of a stroke..
I was a professional speaker and on the road 5 days per week..
We think high stress and a viral infection created the accident..
No one would listen to my wife. So now I am at home, on Social security and VA disability.. I recently had an appointment to see the neurologist who put me on Dilantin and he contrived with his office to disinvite me..
I told them I wanted off the Dilantin..
I asked the VA to look at getting me off Dilantin and they said "we don't know what caused the seizure so we can't change things". Real catch 22. I have been on 500 milligrams per day of Dilantin for 6 months..
I am 62 years old, type 2 diabetic according to the md's (taking Glypizide to control it) and other wise in good health. My family and I ( after consulting Spirit) decided to get me off Dilantin ourselves...
We started a program of reducing the Dilantin from 500/day to 400mg/day for 1 week, then 300mg/day for 1 week, then 200mg/ day for 1 week, then 100mg /day for 1 week. then 100 mg every other day for 1 week, and then none.....
I am now at 300mg/day in this program and ok..just an occasional disoriented feeling. I can find no information about this type of "getting off Dilantin" program..
The feedback is
all.. "you're on it forever"...When I talk to Dr's
I can hear them back off...obviously worried about the
liability..
Can I get some feed back from you on this matter and any
suggestions...
I'd also like to heal the diabetes..
and return to an
active life now....
Thank you and Blessings,
Robert
Dear Robert,
My very hearty congratulations on your decision to get off Dilantin. You are and should be an inspiration to others. Your story? I've published it on my web page about Dilantin, using only your first name for now. If you are willing for me to put your eMail address on that page you might well get queries from others who need your courage and want to ask you about this.
Your message is located at www.oralchelation.com/faq.answers12.htm Check it out!
In every type of "hopeless" disease (such as seizures) you will generally find an "official" organization -- some sort of non-profit, or government entity that has "official" information. I've done a study on this and find that there are a large number of these institutions or groups, sometimes several for just one "disease."
Virtually without exception these entities tell you that the disease has no cure, but they then describe some drug that will help reduce symptoms, etc. The worst of these, and there are many, suggest antidepressants to "solve" the hopelessness that comes along with the disease. Fibromyalgia is one of these diseases -- click here to read my article on that one.
So, "Grand Mal Seizures" are a symptom that has been latched onto by one of these non-profits, the "Epilepsy Association of South Australia," from which anyone gets the "official" description of the event:
COMMON TYPES OF SEIZURES
NEW TERM:
Tonic-Clonic Absence Complex Partial Simple Partial
OLD TERM:
(Grand Mal) (Petot Mal) (Psychomotor or Temporal Lobe) (Focal)Who is affected- All ages Children, mainly All ages All ages
Description- Body stiffens, may be associated with a loud cry, falls to ground unconscious; body jerks (clonic); skin may turn blue; may bite tongue; then sudden relaxation of body; may be incontinent; after seizure may be confused and sleepy. Sudden brief loss of consciousness; eyes blink; slight muscle movements may be seen around mouth; does not fall; able to resume full activity immediately after seizure. Varies widely. Often has loss of awareness of surroundings; inappropriate actions (ie picking at clothes, chewing movements, etc), walks around, seems disoriented, gradual recovery.
Varies- May be only sensation (ie a tingling) in one area; may be jerking of limb (ie arm); may have visual auditory or olfactory (smell) phenomena.
Duration 1 - 3 minutes, seldom longer. 2 - 10 seconds. 2 - 4 minutes, occasionally longer. 2 - 10 seconds: may be longer.
Epilepsy is not a disease it is a symptom of a structural or chemical disorder affecting the brain which causes erratic, uncontrolled electrical discharges
Other "official" organizations abound -- in other countries.
The most important words here are "chemical disorder affecting the brain." These are the watch words of psychiatry -- where every "mental" disease is described as a "chemical imbalance or disorder" in the brain -- thus justifying the use of drugs, and particularly psychotropic drugs.
As long as a seizure is seen as a "chemical" problem, it will be popular to solve the problem with chemicals -- drugs of the worst type -- like Dilantin.
When you "buy into" that claim --
"chemical imbalance in the brain" you then cannot escape
the clutches of the psychiatrist and the psychiatric drug
industry (largely Eli Lilly, but also others). The long-ago origin of the
chemical basis for life starts with a Doctor Wundt, and John D. Rockefeller.
It was they, more than 100 years ago, who launched the current medical model
which says man rose from the mud -- from a sea of chemicals. They say
there is no God who created man.
It is they who popularized the current norm that there is no God, or spirituality (except for ranting and raving lip service). Thus it is they who have made society believe that every illness has a chemical solution. Dilantin is one of those chemicals. CLICK HERE to read about this historical origin of the chemical nature of health care.
Your own experience with the VA
shows this to be true. The VA doctors are afraid to
even talk
about helping you get off Dilantin because
"they know" that the seizures are caused by chemical
imbalances in the brain, and "they know" that they are
NOT experts in this area, and "they know" that the
psychiatrists and the psychiatric drug industry "are the
experts." They even know that, as you said, a jury
will probably find them guilty of mal-practice if they
presume to second-guess the psychiatrists who are, are
they not, the "experts" on "chemical imbalances in the
brain."
This latter problem is enormous. Once there is any hint of brain damage, from either a seizure or an accident, the safe thing for a doctor to do is prescribe Dilantin. He may well, as I am told by frantic mothers, say, "Oh, we'll put your son on Dilantin for a short while to take care of this time when he is recovering from the accident."
When is the "time over???" The doctor, after a week or two, now has a difficult decision.
MAYBE
the person no longer needs Dilantin?? But, if the doctor estimates WRONG,
and takes someone off the drug? Then the person has a relapse or seizure, the
doctor knows that he can kiss his career good by. So, the doctor does the
safe thing. He says that it would be best for the person to STAY on
Dilantin, and that turns into a life-time.
In many cases the doctor really doesn't believe that Dilantin is needed, but so fearful is he of mal-practice law suit that he cannot give that advice.
He would rather see you on this drug for the rest of your life than risk losing his medical license.
And, so medical mal-practice law suits, and the trial lawyers, are destroying honest health care.
This means you have no choice but to learn a great deal about the problem, yourself, and be willing to disregard the doctor's advice.
Incidentally, he will feel safe if he orders Dilantin and you "willfully disobey" the order. He will be safe from lawsuit then.
So, if you don't like your kid, or yourself, on Dilantin, you have very little choice other than take responsibility for your own body, against the advice of the doctor, and do one of the things described in these pages.
I rail on, Robert, aiming at my favorite bad guy -- the psychiatrists who prescribe psychiatric drugs -- and I include Dilantin in that category even though most others might not.
One of my own daughters had "seizures" in her youth. She was living with my ex-wife, had some seizures and my ex-wife was very medically oriented -- put her on Dilantin. She then left her mother to come live with me and my new wife, Jean Ross. We told her that we would not allow her to take Dilantin. That was, as you can guess, many, many years ago, and that was how I felt about it at the time.
We solved the problem with Vitamin B6 (also Vitamin D and K) and a very thorough detoxification program -- on the basis that B6 was probably deficient in her body, but that most certainly there were toxins in oversupply -- toxins that needed to be removed. There is another element here which made a tremendous difference for her -- and I'll be glad to correspond with you or others, personally on this issue. The other issue has to do with the harmful influence that someone close to you can have on you. I've developed an entire web site related to this subject at www.happinessonline.org ... Go visit, then write to me about your "home situation" or other personal relationships -- they could be causing you to be ill, or have seizures!
It takes a lot of courage to
disagree with the doctors, to take your health into your
own hands, or even more to decide on behalf of another
for whom you are responsible, to disagree with the
Dilantin approach.
You are following the most prudent possible approach to self-help on this reduction of dosages of Dilantin. You also have the support of your family and that is of vital importance. You have reduced dosage from 500 mg to 300 mg. I encourage you to continue doing exactly as you planned, but also to read ALL the links from this page and see what further data you can find that will fit into your life.
As you may know I was a "professional speaker," and went on to have a glorious career as a radio talk show host -- on the air 30 hours, live, per week. I suspect that your passion for whatever your subjects are will lead you to be passionate about getting off Dilantin.
At some point you are going to have to take a "risk" -- when you are taking no more Dilantin and are wondering if you will have another seizure and whether it might be dangerous.
I can tell you that my daughter worried about the seizures for a while, but it is now more than 20 years since she had any and it no longer is a concern for her.
You mention Diabetes! Ah!
I'd like to ask you some questions, further, on this one. I am confident that it can be solved completely, but I would like to tailor my suggestions specifically to your situation.
Tell me about your weight, diet and use of insulin. I'll respond.
Robert, this has been a good opportunity for me to share your story with others. I very much appreciate your personal courage and do want you to keep me (us) informed as to what happens? Please do!
Cordially,
Karl Loren
Here is a letter from a friend, who read this page and wrote to me January 22, 2003:
Dear Karl,
Read your article on Dilantin, and it really touched a nerve.
I too was on Dilantin for years.
Diagnosed with a seizure years ago, I was taking 100 mg. 3 X a day for 15 years.
I wanted to get off the medication ,but the doc wouldn't have it.
Some month intervals on E.E.G.s and I still felt I wanted off the drug.
I decided on my own to get off the drug. I reduced the amount weekly. From 21, 100 Mg.tablets, to 20. to 19, etc. till I finally got down to zero.
That was in 1990, and I have been seizure free ever since, feeling uncontrolled by drugs.
P.S. I'm 66 years old, and on no meds. whatsoever, except a very researched combo of supplements.
Sincerely,
Raymond
A fabulous report. Thanks very much. I would very much like to publish your comments on my Dilantin page, and to include your eMail address if you will allow it.
An emphatic yes to permission for posting my comment about my experience with Dilantin.
Also ,you may include my e Mail address, as I'm willing to share my experience
Sincerely,
Raymond Wiland
raytoz@comcast.net
Dear Raymond,
Thanks from all of us.
Karl Loren
Here is a reference from Dr. Garry F. Gordon. I respect him as the most valid medical authority on non-drug approaches to health in the world.
Peters HA, Eichman PL, Price JM, Kozelka FL, Reese HH. Abnormal copper and trytophan metabolism and chelation therapy in anticonvulsant drug intolerance. Diseases Nervous System. 1966; 27(2):97-107. (CA64:16509c) In 17 epileptics reacting adversely to Na diphenylhydantoin (200-800 mg. daily), urinary Cu excretion increased to 0.128 mg./l. as compared with a normal value of 0.03 mg./l. and a value of 0.05 mg./l. in epileptics with no adverse effects from the anticonvulsant. After the ingestion of a 2-g. load of L-tryptophan by 3 of the epileptics, abnormally large amts. of acetylkynurenine, kynurenine, and 3-hydroxykynurenine were excreted in the urine; this indicated an abnormal metabolism of L-tryptophan. When 7 of the patients who reacted adversely to Na diphenylhydantoin also received oral di-N Ca EDTA (0.5 g. daily) or dimercaptopropanol (100 mg. intramuscularly, 3 times daily), the adverse toxic effects of the drug were eliminated and more effective seizure control was observed. (Recommended by Garry Gordon, from source)
Public source:
: Dis Nerv Syst 1966 Feb;27(2):97-107
Abnormal copper and tryptophan metabolism and chelation therapy in anticonvulsant drug intolerance.
Peters HA, Eichman PL, Price JM, Kozelka FL, Reese HH.
PMID: 4956164 [PubMed - indexed for MEDLINE]
And more:
| 1: | Peters HA, Eichman PL, Price JM, Kozelka FL, Reese HH. |
| 2: | Peters HA, Johnson SA, Cam S, Muftu Y, Oral S, Ergene T. | Related Articles, Links |
| 3: | Raine DN. | Related Articles, Links |
| 4: | Godfrey ME, Chappell LT. | Related Articles, Links |
| 5: | Lin JL, Shih FC. | Related Articles, Links |
| 6: | [No authors listed] | Related Articles, Links |
| 7: | Fuchs T, Seubert A, Seubert S, Ippen H. | Related Articles, Links |
| 8: | [No authors listed] | Related Articles, Links |
| 9: | Krause KH, Berlit P, Bonjour JP, Schmidt-Gayk H, Schellenberg B, Gillen J. | Related Articles, Links |
| 10: | Magee R. | Related Articles, Links |
| 11: | Hughes PA, Bower BD, Raine DN, Syed N. | Related Articles, Links |
| 12: | Schnabel P, Erdmann E. | Related Articles, Links |
| 13: | Chappell LT, Janson M. | Related Articles, Links |
| 14: | Lamas GA, Ackermann A. | Related Articles, Links |
| 15: | Lyngdorf P, Guldager B, Holm J, Jorgensen SJ, Jelnes R. | Related Articles, Links |
| 16: | Seguin MA, Bunch SE. | Related Articles, Links |
| 17: | Radwan H, Braun H, Bar-Sela S, Kott E. | Related Articles, Links |
| 18: | Ernst E. | Related Articles, Links |
| 19: | Halpern JS. | Related Articles, Links |
| 20: | Soffer A. | Related Articles, Links |
For information on blood alcohol
level, affected by Dilantin, click Can
Dilantin Cause A Person To Test With A High Blood Alcohol Level?
For information on how Karl Loren believes you can get off Dilantin with a change of diet, click here.
Jay, who wrote the message below, had written me earlier, telling me of some health problems. He mentioned that he was taking Dilantin. I encouraged him to drink lots of water, use MSM (Methyl Sulfonyl methane), and to find some alternative to Dilantin. I suggested to him that Dilantin was an evil drug that built up toxic residue in your system and brought about increased risks of all sort of health problems the longer you used it. I have since added eight studies showing that Dilantin can cause seizures.
He wrote back the following:
Karl,
I hope you and your family had a good Easter and are all well !
Thanks to you, I am doing much better !
I have been drinking plenty of water and taking MSM. My stomach has improved
dramatically. I have had only one bout with a breathing problem and that was while mowing
the lawn this past weekend. I will buy a filter to use and hopefully that will take care
of that problem completely.
I hate to keep bothering you, but I have searched high and low on the net for any possible replacement for Dilantin. The Medical alternatives seem just as bad maybe worse than Dilantin.
There was an interesting article on Garlic that I found, but there wasn’t any real cases that supported its use for a replacement (of course Parke-Davis didn’t have any Dilantin test reports on their site either).
Do you have any possible ideas or suggestions as to sites that I can dig through ?
I want to be "loaded for bear" for my next doctor’s visit. I can direct him to where he can find the negatives, but I can’t offer up any alternatives. As you can see I am trying, but I haven’t had much luck so far.
thanks again for all of your help ... jay
Dear Jay,
First, let me give you a few more of the specifics on the dangers of Dilantin.
From the Physicians' Desk Reference, PDR:
[Click here for "official" information.]
Dilantin, made by Parke-Davis:
Dilantin [phenytoin sodium] is an anti-epileptic drug. Phenytoin sodium is related to the barbiturates in chemical structure . ..
The most common manifestations encountered with [Dilantin] are referable to this system and are usually dose-related. These include nystagmus [involuntary, rapid eye-movement], ataxia [loss of control of muscles -- twitches], slurred speech, and mental confusion. Dizziness, insomnia, transient nervousness, motor twitchings, and headaches have also been observed. There have also been rare [not so rare] reports of [Dilantin] induced dyskinesias [a severe loss of control over the body, where the body twitches, or the person shouts, often swearing and using obscenities that he would never otherwise use -- all of these are the effects of taking this and other psychiatric drugs], including chorea [ceaseless occurrence of a wide variety of rapid, highly complex, jerky movements that appear to be well coordinated but are performed involuntarily], dystonia [disordered tissue tone], tremor and asterixis [a motor disturbance which may appear as a person being in a coma], similar to those induced by phenothiazine [Dilantin] and other neuroleptic drugs.
It also causes nausea, vomiting, constipation, toxic hepatitis and liver damage.
Dermatological manifestations sometimes accompanied by fever have included scarlatiniform [Scarlet Fever] or morbilliform [like measles] rashes.
Hemopoietic [a blood disease] complications, some fatal, have occasionally been reported in association with administration of [Dilantin].
There is more!
You should not take this drug!
Any doctor who prescribes it is a criminal!
He actually belongs in jail.
Now, what can you do about it if you are already stuck with it.
Unfortunately, of all the many thousands of different drugs on the market the psychiatric drugs are the worst. In many cases there is no hope or help. The psychiatrists like this because it guarantees them a market for their shock treatments, drugs and lobotomy -- people who do not "respond" to mild doses of these drugs are advanced into mental institutions, where, if they continue to "jerk and shout out), they may be made more into vegetables by ECT or brain surgery.
It is, of course, extremely dangerous for any honest doctor to try to help because often these drugs are so addictive and so much damage has been done, that any withdrawal from Dilantin brings on symptoms of worsening -- convulsions, etc. So, even when a doctor, or other, thinks there may be some alternative, he may often refuse to treat the patient with a long history of Dilantin -- fearing lawsuit and loss of his license.
Those who have finally decided to get off Dilantin are often driven to leave the United States because some of the possible treatments are illegal here. One such treatment would be live cell therapy.
"Hector E. Solorzano, M.D., D.Sc., Coordinator of the Program for Studies of Alternative Medicines and Professor of Pharmacology at the University of Guadalajara in Mexico, has researched cell therapy as a treatment for cancer, Parkinson's disease, epilepsy, Down syndrome, autoimmune diseases, and certain infant disorders."
If you can find a special type of chiropractor, who is also
not afraid to do the procedure, you may be able to get help from something called
"craniosacral therapy."
Craniosacral therapy is used to treat . . . . epilepsy. Click Here For the story.
Another source of possible hope and help lies in the fields of allergies and nutrition. This could be so vague and general that it would take an expensive and lengthy investigation by a skilled health provider, looking at every aspect of the person's diet and environment. The changes should probably be introduced one at a time, to see how the change impacts on a seizure. In other words, this dangerous procedure would be to cut back on Dilantin after a period of very strict diet change (for instance, absolutely eliminating any processed foods, sugar etc.) for, perhaps a week. If, then, there are no seizures, continue with that diet. You see how risky this is and how unlikely any professional would be to admit responsibility for guiding your changes.
You could only pursue one of these courses of action by convincing some doctor that you, yourself, wanted to stop taking Dilantin.
Most people on Dilantin probably would give up and stay on it -- hooked for the rest of their lives -- hooked worse than if by cocaine.
Some people have gotten relief from epilepsy with homeopathy -- that, too, takes a trained practitioner.
Sometime America is going to wake up to the evils visited upon us by the drug companies in general and the psychiatric drugs in particular. A psychiatrist may seem friendly and reasonable, but they are the worst drug pushers, of the worst of all possible drugs.
Your hope, and health, can only start, relative to Dilantin, by accepting the truth of the evils of that Drug and then deciding that you REALLY want to change. It will not be easy!
I've saved this for last! Ultimately, whether you think so or not, you are totally responsible for your own health. You can go to a doctor, you can avoid learning about these drugs, but you are the only one in charge of your body. When you finally get up enough courage, here's something you can try.
Remember, you must do this only on your own determination -- not because I suggest it.
I understand that the symptoms supposedly handled by Dilantin can be detected in "blood work." So, you get your "blood work" done by some regular doctor. All the while you are taking this Dilantin stuff!
Then, you, on your own, decide to reduce the dosage of Dilantin. You reduce it just a small amount -- and after several weeks, you can decide to reduce it more. Obviously, if you get some bad feeling, go back to it!
But, after several weeks of gradually reducing dosages, you get another "blood work" done.
Maybe you can tell, maybe not, but you then ask the doctor to look at the before and at the after results of the blood work.
More than likely he will say: "They are the same! You must continue to take Dilantin just as you have."
At that point you have to decide. You can tell the doctor what you have been doing -- see what he says. Or, you can go for several more weeks, reducing your dosage slowly but surely.
After
all, doctors are often NOT your friends.
Perhaps after several months you are down to one third of the original dosage.
Now, another blood work!
If the results are still the same, no change, you at least could say to the doctor:
"Look, doc, I've been reducing my dosage for several months and the bloodwork shows no change. Doesn't that mean that I didn't need the high dose I was taking?"
At least he may agree and cut your dose down to what you are taking.
Perhaps he will be willing to test even lower dosages? Perhaps you will decide, on your own, that you can take lower dosages?
I just talked to a man who was taking Dilantin for more than twenty years! He hated the drug. He did just what I've described above. He is now OFF Dilantin completely. He feels great. He is over 70 years old.
I commend that approach to you. But, recognize that you would probably be disobeying your doctor's orders and be willing to live with that decision.
Vitamin B6, all by itself, can bring about relief from the problems caused by Dilantin.
Let me now how it goes.
Click Here to see more information about Dilantin.
Karl Loren
May 11, 1999
Dear Karl,
I read your information on "Is Dilantin Dangerous" It was very informative - I have been on it for many years.
I am now in the process of weaning off of it - Dr. Robert Atkins of The Atkins Center in NYC is monitoring my progress. There is a natural substance called Taurine which helps control seizures.
[Karl Note: here is link to a study about Taurine: Click Here for the entire study, or read below the title of this study.]
You mentioned changing diet. Yes! It was found as early as 1920 that sugar had something to do with seizures. Unstable blood sugar or hypoglycemia can cause seizures and the only good cure for this is a diet void of sugar and void of all processed carbohydrates. For more information please read Dr. Atkins "New Diet Revolution". Diet is the answer to so many medical problems.
I will search your site more closely - but so far - good work!
Thanks,
Garrett
Dear Garrett,
Dr. Robert Akins is a friend of mine and I'm
delighted you have found him.
His tip on Taurine will probably help many others who read your story.
There are psychiatrists who try to tell you Taurine won't help -- they are almost always giving out false data.
Click here to read about Tardive Dyskinesia, and also about "taurine."
Karl
Dear Karl,
I've been taking Dilantin for many years. Recently I broke my arm -- 8 surgeries later is is apparently fixed.
Could Dilantin cause slow repari of bones?
Bill
September 28, 2002
Dear Bill,
Yes.
Here is a reference:
Medications: corticosteroids, dilantin, gonadotropin releasing hormone agonists, loop diuretics, methotrexate, thyroid, heparin, cyclosporin, depot-medroxyprogesterone acetate (all cause osteoporosis or poor bone health) (Source)
Cordially
Karl Loren
August 1999
Dear Karl,
I took Dilantin for 32 years, but stopped about 2 1/2 years ago. I have experienced the commonly known side effects and many more, such as severe swelling of face and body and bone malformation to name a few. Fourteen months after stopping the Dilantin, I noticed severe loss of tissue, muscle and fat (like liposuction effect) in my calves. Three months after that, I noticed it in my face, neck and body. I have actually gained weight, but it seems that I have grown extra skin only.
My questions are: Have you come across anything similar to this in your research? If so, what are your recommendations or what type of Doctor should I see? Does Dilantin effect the central nervous system and memory? If so, what tests can be done to detect it? What is Dystonia?
I need your help. I appreciate any information you can give me. Thank you so much.
Concerned
Dear Concerned,
"Dystonia" is a loss of "tone" in muscles. It is caused by Dilantin, but in truth, is caused by your doctor -- you should sue him. It also relates to "tardive dyskinesia."
You should be asking about "dyskinesia." Click Here to read about that.
September 24, 2002
Dear Karl,
First of all let me say, "What an informational site!
My husband is 72 years old. Today he had a Dr. appointment at his VA Medical Center in Mountain Home, Tn.
Over the past year he has had 6-8 light seizures. The VA ran all kinds of tests and today sent him home with a bottle of Dilantin.
When I saw what it was, I became alarmed and asked him not to take any until I had researched it. Over the years I had heard bad things about this drug. And I knew that it's a very in demand "street" drug. So I got online and did a web search.
I soon realized this drug is even worse than I thought! I showed my husband all the reports on Dilantin.
But it was the information on YOUR website that convinced him not to even start taking this drug.
And you can bet we are going to be on the phone to the VA Medical Center first thing in the morning letting them know my husband will not be taking this drug.
Thank you for all the help you've given us through your very informative website. You can bet I will be sharing it with others!
Thanks Again
Bonnie
Dear Bonnie,
Thanks very much for the ringing endorsement -- completely unsolicited and all the more to be treasured, and valued by browsers who will see it.
Let me know what the hospital says? I'll publish whatever happens.
I've published your message, without your last name. If you want even more privacy, let me know. If you are willing to have your name and eMail address show? let me know.
Cordially,
Karl Loren
What I ask YOU to Do!
I,
Karl Loren, get more inquires about Dilantin, and related
to this web page, than any other page on this web.
it is amazing. I have a statistical analysis
program. It tells me which of the 4,000 pages on
this one web site are most often visited.
The page called "answers12.htm" is one of the most popular. That means that people who enter the term "dilantin" in a search engine very often find my page on the top of the search results list. Dilantin is the single most often entered word in a search engine that results in someone visiting this web site, and this exact page is one of the most popular on the entire web site.
Many of these people call me or write.
I am now asking, even demanding, that anyone who seeks my further help on this terrible drug do something.
I ask that person to go to the doctor who prescribed Dilantin, and demand (not just ask) to be taken off, and an alternative found. I demand that of you.
I would expect that the doctor will refuse -- and try to convince you that you must stay on Dilantin for the rest of your life.
Ok!
Then, send me his name and address, and your quote of what he said.
I will publish his name and address, as a person who prescribes poison, and refuses to help someone get off this addictive and dangerous drug. He may sue? Let him sue!
It is time some people rooted out the evil of Dilantin, and the drug pushers to prescribe it, under "cover of law."
Will you help me on this?
Karl Loren
This web page continues to be one of the most often visited on this entire 4,000 page web site, so I keep adding to it.
Here is information I found in reference to a question from a woman, pregnant, who asked me how she could breast feed her baby, while taking Dilantin.
Here is one answer:
Although anticonvulsants are excreted into breast milk, most mothers who require the use of these drugs can safely breast-feed their infants.12,13 Determination of maternal serum drug levels may be a useful adjunct to clinical monitoring of the infant when evaluating the drug exposure of the infant.
Phenytoin (Dilantin) and carbamazepine (Tegretol) are compatible with breast-feeding.6,8,10,12 Although the AAP considers valproic acid and its derivatives (valproic sodium and divalproex sodium) to be compatible with breast-feeding, some experts recommend against their use during breast-feeding because of the potential for fatal hepatotoxicity in children younger than two years.6,10,12
During breast-feeding, anticonvulsants other than phenobarbital and primidone (Mysoline) are preferred because the slow rate of barbiturate metabolism by the infant may cause sedation.6,10,12 Infant serum levels may be helpful in monitoring toxicity. Source
Also, see this page on another of my web sites: http://www.karlloren.com/diet/p97.htm
Dear Karl,
I need a copy of a report that i received regards to Dilantin and you should
not take this drug. Any doctor who prescribes this medication should be brought
up on criminal charges
1 have taken Dilantin for 18 years when i moved to sacramento and became very
ill, i could not go out into the sun, and had heavy blankets on the window, and
lost 40 pounds instanly. I called the dr. who gave me the medicine and he
refused to see me, said that he did not prescribe the dilantin anymore and I
can't come back there. I cried and said but you saved my life `18 years ago u
told me any injury the migraines would return, they have Im scared. he hung up,.
my mother said that he could not see me or that would identify his seeing me, he
probably didn;t think i still had the medical files, i do, the docotr took me
off said well since you can't get your drivers licence stop taking it.
the changes in my health that I see after being off of this medication im
scared, and the way that it has effecyed my teeth , i just received a letter
from the fda and they said that the doctor should see this is due to dilantin
and not cosmetic .
the trigger pts around the neck are full of notts that can't be released there
hard and i have 28 trigger points, im sick and so scared and can't get the
disability to help me,.I see there are dilantin class action lawsuits could you
please help me with this, im in allot of pain,
Please any suggestion would be helpful
it says on the internet that you need to get the lawsuit to class action before
may 3 2003
please anything you could help me with I would appreciate, i have all of the
co existing illness associted with fibromyalgia and myofasial
please help me
thank you
A neuroligist gave me dilantin after i was hospilized for 11 days and out of
those 11 days 8 days I was given demerol in the butt every hour on the hour, and
in my veins,. I was told that this was for untrackable migraines, i had an
anjina i was told if I ever had a n injury that the migraines would return and
be double the pain, the hell that I suffered was a determination to contimue
this drug, nor was I informed that the drug should be evaulted or to wear a
brachlet, when doctors ask why i take this, i told them that I was told that the
blood vessels constrict and shuts off the oxygen to my brain causing severe
migraines, well 6/10/02 I had an injury( but had previously and nothing happen(
but this time it caused the migraines to return, lost 30 pounds,. could not go
out into the sun from june 02 to october 02, when the blood vessels started
popping in my head, i remember back and said oh my god the migraines are
returning, I
Karl Loren
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